This is a true story about a mother who has a lot of challenges from giving birth through finding out her son has Duchenne Muscular Dystrophy. She has strong unconditional love for her children and nothing will stand between them. Besides facing the fact that her son has a fatal illness she also holds strong through divorce and the Gulf War. She takes you on the journey of their life and beyond. This book will take you on a journey through the life of a mother and her children. Though it is not a typical motherhood story. One of her children was born with a birth defect through what was called a genetic mutation. There was no history of this birth defect on either side of the family. Paul was born with Duchenne Muscular Dystrophy and the mother and kids had to learn how to live, cope and love in a whole new way. You will laugh and you will cry as you read of this familys' ups and downs. All families have their moments but it makes it even harder when there is a loved one with a terminal illness that just popped into their life with no warning. The author started to write the book as a therapy for herself because she missed her son so much and to keep the memory of her son alive and in the process of writing she thought maybe her book might help others who have loved ones with the same illness or with cancer or whatever others might be going through so she hopes that her book might help the families grieve or cope or smile or cry knowing that they are not alone. It also is a good book to show kids that no matter what if they put their heart into it they can do whatever they want to do. On another note if your children think they have it bad then they should read this book to realize how good they have it. Things could be worse....
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About the Author:
I am a mother of four. I have a daughter who is 25, a stepson who is 20, a son who is 15 and a son who is 12. We live in southwest Florida. I have a wonderful husband, John. We enjoy fishing, camping and have recently taken up paddle boarding. We also enjoy cooking great meals together. I was born in Buffalo, New York and moved to southwest Florida in 1978 after the blizzard of 1977 and my parents figured that they were done with snow! I have done everything there is to do in restaurants from dish washing to managing. Living with a child with Duchenne Muscular Dystrophy really makes you realize how good the rest of the population has it and when asked many times throughout my motherhood "how do you do it?" my only response was when you love someone as much as you love your child you don't think about it, you just do it. Having a child with a terminal illness you have to learn how to cope and love in ways that you never knew existed. It is because of this tremendous love that I decided to write my book. I wanted the memory of my son to live on, I wanted his inspiration on everyone he came in contact with to help others. I want to help others that are in the same situation that we were cope with it the best possible and if that only means helping them to realize that they are not alone and there is help out there for them and there are others going through the exact same situation then my wishes for my book have been fulfilled.
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